Author: Emily

Gluten-Free – The First 24 Hours

I have very hopeful results to share on my gluten-free diet! I’ve only been gluten-free for about 24 hours, but I’m already seeing interesting, promising results.

Let’s talk numbers! This may only interest me, but I’m finding my results absolutely fascinating.

Tuesday, April 4, 2017

I tested my blood glucose (BG) at my brother’s house with a result of 522.

Friday, April 7, 2017

I have all my supplies (insulin, glucometer, plan for how to administer insulin based on BG prior to each meal). For the following week, my BG numbers looked like the following.

Breakfast Lunch Dinner Notes
Pre- Meal BG Carbs Insulin Pre-Meal BG Carbs Insulin Pre-Meal BG Carbs Insulin Bedtime BG
Saturday 162 ? 3 280 ? 5 152 ? 3 311
Sunday 236 ? 4 114 ? 2 204 ? 4 235 Low @ 9pm
Monday 209 ? 4 95 ? 0 142 ? 2 211 Low @ 8pm
Tuesday 219 ? 4 270 ? 5 120 ? 2 327

You may not notice a theme, but the BG are too high (<150 is goal). There is also a disconnect with the BG before the meal and what I intend to eat at the current meal. With this plan, I was dosing my insulin only based on my BG at the beginning of the meal. This is protocol so as to not overwhelm the patient who is new to diabetes.

This is not my first rodeo, folks. So I pressured my doctor to add carb counting to my management on Thursday, April 13, 2017. They were still hesitant, not wanting to overwhelm me, but I won (or really we won, Dan and I). We left that appointment with my first carb/insulin ratio to hopefully adjust at each meal for the current BG and the carbs I’m about to eat.

Side note: I’m not sure my endocrine office knows what to do with Dan and I. I think we’re a bit intense for them. 🙂

Here are my results after the 4/13/17 meeting:

Breakfast Lunch Dinner Notes
Pre- Meal BG Carbs Insulin Pre-Meal BG Carbs Insulin Pre-Meal BG Carbs Insulin Bedtime BG
Friday 182 ? 2 148 148 4 182 74 3 119
Saturday 194 15 1 122 61 2 104 38 1 208
Sunday 148 33 1 131 37 1 128 114 4 136
Monday 174 22 1 93 73 2 154 38 1 155 Started working out

Overall, you’ll notice the BG numbers are way lower, mostly <150. Woot! Progress! Carb counting is obviously working, and the doctors are pleased. I continue on this course until I find the article I mentioned in my last post.

I started eating gluten-free at lunch on Tuesday, April 25, 2017. Here are my results so far:

Breakfast Lunch Dinner Notes
Pre- Meal BG Carbs Insulin Pre-Meal BG Carbs Insulin Pre-Meal BG Carbs Insulin Bedtime BG
Tuesday 123 30 0 128 30 1 97 30 0 141 AM workout
Wednesday 140 27 0 89 60 0 117 20 0 86 AM workout, 3 lows during the day
Thursday 149 27 0

So these are still higher than your average non-diabetic person, but what the what?!? To be clear, the above lunch and dinner on Tuesday and Wednesday and Thursday were all gluten-free.

I also take a long acting insulin that’s not recorded in the charts above. I had 3 low episodes yesterday so I think my need for that insulin is decreasing. I usually take 7 units, and today I took 5 units.

I don’t know if this is a fluke or if my insulin will continue to decline. It’s exciting though!

Gluten

I have always believed these gluten free diets that abound today are a bunch of hooey. It really goes deep into my worldview. I believe God created the whole world for us. I believe it provides good food in season when we need it. I believe wheat is good for us.

However…

I believe in moderation. I believe in eating whole foods (so if you buy it in a box or bag at the grocery store, it is most likely not good for you).

Thanks to a good friend watching out for me, I came across this article this week:  Remission without insulin therapy on gluten-free diet in a 6-year old boy with type 1 diabetes mellitus.

What the what?!?! A gluten-free diet caused this boy’s body to stop attacking it’s beta cells. Seriously?!?! He was able to halt the killing of his pancreas by changing his diet.

A little back story: Dan and I like to watch documentaries, particularly ones on food/diet/health. We strong believe in the power of good food on the body. One of the documentaries did a study on curing cancer through diet. In summary, they were able to halt the production of cancer cells within the body by changing the patient’s diet. I was very compelled by this study, and I told Dan, “If I’m ever diagnosed with cancer, I’m finding this doctor and signing up for this treatment. Why would I not want to change my diet to save my life?”

So here I am today, with a life-threatening (if not managed through medicine or some form) disease that has the potential to be treated through diet.

How can I not try it?

Gluten-free…here I come!

Circling back to God’s goodness providing food on this earth, I am questioning parts of my worldview. Here’s where I’m at now:

  1. Sin in our fallen world – This takes several forms one possibly being that NOT all food is good for us. I don’t know this for sure, just a guess. The biggest agrument in my mind is that every culture has a basic grain that provides the basis of their diet. How did ours turn against us? This leads me into my next point…
  2. Sin nature in humans – We are greedy, self-centered people and our corporations are run by human with these tendencies. We farm for profit, and we do all we can to ensure profit: GMO’s, pesticides, unnatural crop rotation, highly processed food, unnatural by-products in our foods (high fructose corn syrup!!!), etc.

I know I’m out there in my views on food. I believe it was all created good, but we messed that up. I’d love to hear your side if you disagree.

Self-Discipline

Backstory

I used to be very disciplined when I was in middle and high school.

  • I got up at 6:00 am every morning to make sure I had plenty of time to get ready for school. My school was literally across the street, like a 20 second walk. Ha!
  • I read my Bible daily. I had a Daily Bread kind of a devotional for teens. I saw my parents faithfully reading the Bible, so I did too.
  • I played sports: gymnastics in middle school then volleyball in the fall and cheerleading in the winter in high school.
  • I worked out every day except Sunday.
  • I took leadership opportunities when I could: translating a school handbook from Spanish to English, “leading” my sports teams (in quotes because looking back I was such a know-it-all, take charge kind of person, this was probably not my finest moments).
  • Taking a very full course load my senior year of high school. I, and 4 other students, even elected to take Physics after school because that was the only time the teacher could teach the class. Yes, disciplined and crazy I was.

This discipline even bled into college but that’s when things started to slide downhill. The last few years, I’ve had spurts of discipline. I have good intentions to set goals and accomplish things, but they all fall to the wayside eventually.

The last 2-3 years I’ve had lofty aspirations at the beginning of the year. I tentatively set some goals for the year but never really follow through. I knew I could be doing more as a wife/mom/friend, but those ideals only lasted until February, if then.

Now: 2017

In January, I had the same burn in my soul to accomplish much, to do great things. So I decide to challenge my small group at Bloom (a mother of young children program at my church, I lead one of the small groups). What are they going to accomplish? How can we change how we manage our households? How can we hold each other accountable and encourage each other?

Really, my encouragement was all for my own benefit!

  • I needed accountability.
  • needed encouragement to stay the course.
  • I needed someone else to be determined with me!

The two areas I identified for myself were budgeting and household cleaning.

I love to budget. I love to manipulate numbers. In my former life before kids, I was an actuarial analyst for an insurance company. I like numbers.

However, my impressively complex spreadsheet budget was super time consuming to actually use. I’d have the best intentions to do it once a week or even every two weeks, but I would fall behind and then delay even longer because I knew how long it would take to catch up 1 or 2 months of receipts.

I decided to give You Need A Budget (youneedabudget.com) a try. I had tried about 8 months prior but never took the time to really understand how the software worked, so I gave up quickly. This time I persisted. I took their live webinars. I learned how the software worked. I changed my view of how to manage our money. Guess what? We’ve made HUGE gains in our financial stability in the last four months! I (we) was quite lax in sticking exactly to our budget. We’d over spend a little here, a little there but never really adding things up because I was only doing our budget every 1 or 2 months. Recipe for disaster.

As far as taking care of and cleaning my house, I was constantly overwhelmed because it felt like all of the house needed to be cleaned all. the. time. The thought of cleaning overwhelmed me because I just couldn’t tackle the whole house all the time.

Enter Pinterest. There are a million household cleaning schedules on Pinterest. I did a bunch of research as to what would work for me and here’s what I ended up with: I use Google Keep and a series of lists to keep myself organized. I have one list for daily tasks that I just un-check all the items at the beginning of the day and try to hit everything on the list each day. Then I have six other lists (Monday-Saturday) with specific cleaning chores so that by the end of the week all of the major cleaning tasks have been done. I have stuck with this plan, with a few bumps in the road due to sickness, since January.

Ok, whew, that was my intro! It turned out so much longer than I thought it would!

All that to say, this diabetes diagnosis would have been so much harder if I hadn’t been working on my self-discipline since January of this year.

  1. Financially – We aren’t a wealthy family. We make a very average income. However, we are on top of our budget, since January. With the diabetes diagnosis, we will now have an additional $100-$200 expenses every month. If you are a budgeter, giving each penny a task, then you will know this is a huge expense. I actually don’t know how we are going to cover it yet. God is faithful. He will provide. Of that, I have no doubt.
  2. House Upkeep – The house isn’t a disaster after doing zero cleaning for over a week! Prior to January, my house would have totally fallen apart, been disgustingly dirty, after a week because it wasn’t just one week from cleaning the toilets, it was actually 3, 4, or 5 because I had put it off for so long!
  3. Spiritually – In the past few years, God has changed me tremendously. He has exposed my pride, anger, and lying. He has shown me His grace as He forgives and changes these patterns in my life. Diabetes has been overwhelming these last few weeks. My brain is constantly churning and thinking. If God hadn’t been working on my anger and general self-centeredness, I’d be losing it so much more often than I am now. I’m not saying I’m perfect, but I’m so much more patient and gentle than I was in the past. I would have a much harder time adjusting if I wasn’t continuing to ask God to change me to be like Him.

In addition to these major areas, I’m learning to be more disciplined new areas that are kind of funny but needed for the long haul:

  1. Checking my feet everu night for bruises, cuts, and callouses. I moisturize them every night before bed now to keep the dryness at bay.
  2. Staying on top of medical bills, paying them on time, keeping my files organized for future audits/tax purposes.
  3. Keeping up on the clutter: insulin and it’s supplies, glucose meter and it’s supplies, sharps disposal, etc. I need work on this, but I’m trying not to let the diabetes paraphernalia take over our house (or the great number of boxes and packaging material they come with!).

This is where I’m at for today. I’m so thankful God put these things on my heart (even though they’ve taken years for me to even tackle somewhat successfully!) and that I was working on them prior to April 1, 2017.

Being a Type 1 Diabetic Mom

I think the hardest part to manage with my diabetes diagnosis is the juggling of my needs with my children. My kids are not always needy, but wouldn’t you know, they NEED something the minute my blood sugar is dropping and I need to care for myself.

I’m all about kids learning patience, waiting their turn, and compassion/empathy for others. But folks, I’m in the thick of it. This is what I’m working on with my kids every day. I was working on this every day before the diagnosis. The diagnosis has exacerbated the need, but also make the lesson that much more difficult for me to teach. I might be feeling fine OR low/shaky, high/irritable, screaming headache…all really difficult times for me to quietly explain how we should react/how we should act like Jesus to others.

One night, I was getting the boys ready for bed. We were in the final 10 minutes. You know that time: heading up the stairs to brush teeth, potty/change diaper, pajamas on, pray, and go to sleep. This is the last push of parenting for the day. It is a critical time for me to remain calm, show Jesus’ love and compassion to their crazy energetic bodies and get them those final steps into bed. Then…my chest starts to tremor. (I feel the shakes in my core first, like the organs inside my rib cage are shaking.) Then my legs and arms (as I’m climbing the stairs with my wild monkeys). As we are brushing our teeth I realize I probably shouldn’t push through. I probably need to stop and take care of myself because I don’t know for sure how long bedtime will take (one monkey likes to take 20 minute poops sometimes!) and I don’t know how quickly my blood sugar will drop.

Therein lies my dilemma, I’m almost to the finish line for the day. Just a couple more minutes and the kiddos are in bed. BUT, I need to stop, test my glucose level, drink juice, set a timer (I WILL forget to test again!), then return to bedtime.

If I stop bedtime, you know what my kids will do, right? Yep, wild, crazy monkeys. They will inevitable be naked in the basement in no time at all, and I will have to start all over again.

Responsibility to care for myself and teach my kids to be patient wins, I go downstairs to care for my blood sugar then return to bedtime.

It didn’t even turn out that bad. My oldest waited patiently on the potty, and my youngest was only a touch crazy, running around half naked.

Bedtime continued. They were in bed only a few minutes late.

This whole diagnosis has been challenging not only my kid’s patience as they sit at the lunch table staring at their food but waiting for mommy to eat, but to my patience as I need to pause regular activities to care for myself. I’m not sure which is harder. Both are challenging. God is giving me more ways to grow to be more like Jesus. Right now, that looks like more patience in mommy and more patience in the wild, crazy monkeys. Truthfully, who couldn’t use a little more patience?

Weird Side Effect?

I’m not sure if this is a side effect of T1 diabetes, but I seem to be extremely susceptible to dehydration. Maybe. I’m getting about 1 killer headache per week. I don’t really know the cause, but my first guess is usually dehydration.

I never got headaches until I had my AVM surgery. Headaches are a side effect of the surgery, and I spent the first year post-surgery mapping them out over time. I saw them consistently taper off until they were few and far between.

Since that time, around 2010, I’ve only gotten an occasional headache that I could usually directly link to being lazy on my water intake. Once the headache would hit, I’d chug 8-16 ounces of water and it would be gone in an hour or so.

The weird thing about these last 3 headaches is they are in the same location of my head (above my left temple) as my “AVM headaches.” My dehydration headaches are usually across my forehead. Hmmm…

While I don’t think my brain is bleeding, pain in the same areas as my AVM issues make me stop and think.

I’ve had one per week since my diabetes diagnosis. Drinking water doesn’t help. Tylenol doesn’t help. I’m not really sure what’s going on.

More Processing: Self-Pity

Self-pity is addicting. It feels good to tells myself I don’t deserve what’s happening to me. It feels good to roll the scenarios of the last week around in my head.

How did I get a diagnosis in one week exactly? I called my endocrinologist, who needed a new referral, my primary care physician doesn’t practice anymore, find a new primary care physician, whoops set 2 appointments with PCP, cancel one appointment, run to a PCP visit that day, wait 24 hours, call endo to see about referral, explain nicely that I’m VERY concerned and need to see the endo, push, push, push, fight, fight, fight…

I did so much work! I am amazing.

Proof of this lies in the fact that the endocrinologist can’t believe I (1) got an appointment with her with two days notice and (2) even noticed my symptoms in the first placed. I am so good.

Well, since I did all that work, poor old diabetic me, I can take a lazy day. No housework for me. I’m spent. I’ve done SO MUCH today. Let me think it over again…

I can get so wrapped up in what happens to me: the sequence of events, the unfairness of it all, or even the unknowns to come.

However, wallowing in my own self-pity gets me nowhere. In fact, it actually takes me backwards.

  • Emotionally – I haven’t truly accepted the diagnosis. I’m not fully in denial but definitely not embracing and moving forward.
  • Physically – While my body is doing fine, the physical state of my house and home are a wreck. It feels like too much to vacuum, too much to wipe off the mirrors, too much to clean the toilets. I’ve been thinking about my food, insulin, health insurance, glucose test strips running out, comparing health plans during open enrollment, etc. etc. How could I possibly do housework right now???
  • Spiritually – A song comes to mind: Trust and obey, for there’s no other way to be happy in Jesus than to trust and obey. I’m not really trusting Jesus with anything if I’m stuck in my own self-pity. That’s the thing about self-pity. It only focuses on myself, not on God, as my focus should be. I’m not seeing the blessing in the diagnosis. I’m not asking to see the blessing in the diagnosis. I’m not seeing how God can use diabetes to make me more like Him. I’m not seeing how I can be impacting others for Christ. I’m not seeing any of this because I can only see myself. Poor old broken me.

I may stumble sometimes, ok, all the time, but I know Jesus. I know He has more for me. I know He is working in me, and He designed my pancreas to last only 33 years and 3 weeks. I don’t know how He’ll use this for my good and for His glory, but I’m trusting Him to do so.

So I picked up a rag, cleaned the mirrors, and wiped finger prints off the windows/appliances/trash can. You know what? It only took 10 minutes. At the end of the cleaning, I had a boost in my step because I had accomplished something that day! I had 2 items to check off my To Do list!

The boost also allowed me to open my Bible and seek Jesus, not for what he could do in me, but just seek Him. I’m in John 19 now, Jesus’ death on the cross. It’s beyond horrific. The older I get the more I can picture and imagine the beatings, the mocking, the pain, and He did it all in quiet submission to the Father so I could have a relationship with Him. Me, this “broken” (sarcasm font) human, wallowing in self-pity because boo-hoo I have to inject a teeny needle into my body so I can eat and live. There’s nothing like true suffering by someone who actually didn’t deserve it to bring me back to reality.

Jesus is my life. Serving Him with what I have is my desire. He just gave me another tool with which to serve Him, and a whole new circle of people to show Christ’s love. What a blessing!

Processing

I’m still trying to accept the Type 1 diabetes diagnosis. I realize this isn’t a death sentence. This is a completely livable condition. It likely won’t kill me, unless I fail to manage it.

Therein lies the burden: management.

I am still in the adjustment phase. I’m not carb counting (yet seeing the need for it with each passing meal!) rather I’m administering insulin based on the level of my blood sugar. It’s a retro adjustment rather than a forward-looking adjustment. If I am high at the beginning of a meal (due to what I ate at the last meal) then I take more insulin regardless of what I plan to eat at the current meal. I totally see why diabetics count carbs, and I’m actually looking forward to it. Weird-o.

Back to management: it’s exhausting. I have two young boys who command a lot of my attention, and when they aren’t, I’m “managing.” I’m testing my glucose level, administering insulin, cooking a meal, answering the phone (talking to doctors, pharmacists, SO MANY diabetic support programs, etc.), talking to the health insurance company AGAIN, etc. etc. It’s exhausting. My introverted self has not had a moment to think. Until right now, really, as I type this. Super dad took the boys out golfing, and I am typing away. Processing, if you will.

I have some thoughts to get out. Here it is in all it’s selfish glory: I feel like I’ve already suffered enough, medically speaking. This diagnosis doesn’t seem fair.

I feel guilty even typing that. I know it’s wrong. God made my body exactly as He intended. Psalm 139 says

For you created my inmost being;
    you knit me together in my mother’s womb.
I praise you because I am fearfully and wonderfully made;
    your works are wonderful,
    I know that full well.
My frame was not hidden from you
    when I was made in the secret place,
    when I was woven together in the depths of the earth.
Your eyes saw my unformed body;
    all the days ordained for me were written in your book
    before one of them came to be.

This passage was especially comforting to me after I went through my AVM surgery. God put my AVM in my brain. He did it on purpose. It didn’t surprise Him. It was enormously comforting to know that my AVM was a part of His plan, His purpose, for me.

It was easier to accept His plan for me with a one time surgery that turned out so positively. It is a lot harder to accept a lifetime diagnosis that requires constant care and attention.

And yet, I know my God is faithful and true. He would not let anything happen to me outside of His plan. His plan was for my pancreas to stop working  normally around April 1, 2017.

The week before the diagnosis, I was studying John 18 and 19 in my BSF Bible study. This is the trial and torture of Jesus before His crucifixion. Pilate’s indecision was a decision against Jesus. Even when Pilate saw that Jesus was not guilty of the crimes the Jewish leaders accused him of, Pilate did not stand up for truth. I left BSF that day with the question “Is Jesus my Savior and my King?” stuck in my head. I wrote it at the top of my notes. Is it true? Is Jesus Lord of everything? All areas of my life?

Later that day, I wrote this down

Is Jesus my Savior and King? Is He really Lord of my life? Am I acting on the truth given to me? I sure pray it is so. Lord, use me; change me, don’t let me be stagnant. Make me more like you.

I wrote this on Wednesday, March 29, 2017, three days before I started having symptoms of Type 1 diabetes. I believe God’s purpose with the diagnosis is to change me, to use me, to make me more like Him. I refuse to let this opportunity to go to waste. I want it to be used for God’s glory. Anything less and I will be striving for nothing.

My Side of the Story – Part 41

To start at the beginning of the story, click here.

I vividly remember my first shower when I got home. I hadn’t been alone to take a shower in 5 weeks. I was a little nervous. What if I fall? What if I get tired? What if my incision splits open? (Ha, so I didn’t really have that thought exactly, but I didn’t like touching my incision. It gave me the hebejeebies!)

I had a shower stool in the shower, so really, tiring and falling wasn’t a true concern. As long as I was smart and sat down when I needed to, I’d be fine.

I really think I used the stool my first few showers than never again. While at home, going up and down stairs and doing all the care for my person, I built up stamina quickly.

Nevertheless, the first shower is unnerving.

Dan sat on the bed in our room and waited for me. He’d have been at my side in an instant if anything were to go wrong. I can still picture him sitting there. I wonder how nervous he was. Maybe he knew I could do it, and it was no big deal. It was a big deal to me.

I chose to continue my outpatient therapy at Mary Free Bed. Even though I wouldn’t have any of the same therapists or even the same facilities, there was a level of comfort and trust with the care I had received at MFB. This decision greatly impacted my family though. Dan and I lived in Grand Haven, Michigan at the time, a good 50 minute drive from MFB. My mom and two sibilings were living with us at the time to fill in the gaps of care should Dan need to be at work (I was to be under 24 hour supervision for the first 30 days of going home). So that meant a LOT of driving for my mom.

I don’t know how often I had therapy, at least three times a week, maybe more. So lots and lots of driving.

I had a harder time enjoying my outpatient therapy. On the one hand, the therapists were changing all the time. Their schedules are so full that it takes a while to get enough space in one therapist’s schedule to see the same one consistently. On the other, I was living mostly on my own and I still had therapists tell me I was “slow.” My ego was so big. I still couldn’t handle this.

Don’t they know what I’ve been through? I’ve had OPEN SKULL brain surgery! I’ve had my head cut open, put back together, and LIVED! I learned to walk again, move my arm, fingers, wrist, tongue…they don’t move quite correctly but isn’t that minor??? I’m smart. I work as an actuary. I know math like these therapists have never seen. I can write Excel formulas that can make your eyes swim. I…I…I…

Big ego. I’m not kidding. I thought I was so smart that there was no way I could be slow. I was so wrong.

Speech therapy was still my least favorite and the most likely sessions for me to be told I was slow. My primary therapist got on my nerves, a lot. She loved pop culture quizzes and games. I don’t know pop culture. I don’t know current TV shows, game shows, or music. I might recognize a song, but I’d have no idea who sang it. Thankfully I was with it enough to tell her that I just don’t know pop culture. It’s not that my brain isn’t working; the information just isn’t there. 🙂

So we ended up playing a lot of card games. Again, not my strong suit but better than the “Who sang this song?” quizzes!

I remember my speech therapist releasing me from our sessions. We had already finished our speech session, and I was working with my occupational therapist. She approached us and asked, “How would you like for our sessions to be finished?” I can just imagine my face lit up with pure joy…ha, I feel a little bad looking back at how overjoyed I was to be finished with speech therapy. I don’t know my response exactly, but I was probably overly emphatic about how much I want to be done.

A New Chapter Begins

I started this blog with the intention of being a home decor or possibly a DIY blogger of some sort. I like alliteration, and I was quite pleased with myself on my blog title: Flawed yet Functional. “Good one, Emily! Repeating “F” words, short yet meaningful, easy to remember (at least for me it is!), useful in many applications houses (no house is perfect), furniture (same), decor (always somewhat flawed, I’m not a professional!), my body (my AVM story), etc. Yes, this is a good title with a variety of uses and applications in blogging.” Little did I know just how useful!

While I still love decorating and renovating our house, my family has taken precedent the last few years. The desire to write, share my story, and encourage others still exists. My most recent physical struggle brings this blog to the forefront of my mind again. What if my story (and it’s continuation…) can encourage/guide/warn others? What if by writing out my story, I not only help myself process but others as well? In that vein, I no longer write for the hope of being internet famous or even making money on this ole blog, I feel the need to share. God is working something out in my life. I don’t know what yet, but I think writing here may help me figure that out.

So what’s happened?

Last week was Spring Break here in West Michigan. My husband and I intended to spend it quietly at home for the most part. We had two weekend trips planned, but those were going to be small and low key. The first weekend trip had us staying in a hotel, and my husband knew to purchase a couple gallons of bottled water knowing that hotel water doesn’t taste wonderful. Friday I was drinking it fine. I thought it tasted a little odd, but I was thirsty (and the hotel water truly was yucky) so I just kept refilling my water bottle.

Friday – In the evening, it occurs to me that I’ve filled my water bottle a lot, several times since arriving that afternoon. Just how many times, I’m not sure, but it is starting to occur to me that it might be more than normal.

As it happens when you drink a lot of water, you must urinate often. We had a hotel room with a separate bedroom, and of course, the bathroom is in the bedroom. We had put the kids down in the bedroom so they could have the quieter, darker room. The things we parents do for a good night’s sleep! I had to sneak into the bedroom several times that night. Hmm, that’s odd. I still thought I just drank too much water.

Saturday – I notice how thirsty I am and decide to keep track. I drank 75 ounces before lunch. Yikes! That’s a lot! Now I’m wondering what the cause is. I immediately think it’s the bottled water.

There must be something in that water!

I mention my issues and concern to Dan, and we both think it’s odd but likely the bottled water. My body must not be used to it…or something.

Sunday – I think my thirst returns to almost normal. It’s still high, but not 75-ounces-before-lunch high.

Monday – I’m driving my kiddos to a petting zoo in the morning, and I notice my far-sight is blurry. I couldn’t focus further down the road. In fact the more I tried, the blurrier it got and the more my eyes watered. By the time we returned from the petting zoo, it had returned to normal. Weird, but I didn’t really give it too much thought. I talk it over with Dan. “Diabetes?” I mention “Probably, not but I’m seeing my brother’s family tomorrow. I can test my glucose level there.”

Tuesday – I’m heading to my brother’s house, and my vision is blurred again. I’m aggravated/nervous. It’s looking like diabetes to me, but I feel fine. Absolutely fine. I test my glucose level as soon as I arrive. I’m chatting it up with my sister-in-law and niece, not really paying attention to the glucose meter.

“Aunt Emily!!!” My niece exclaims.

I look down at the meter, 522 it reads. “Is that finished counting down? Like, is that the number?” I ask.

“Yes! That’s your blood sugar!” My sweet adolescent niece exclaims. Shock and awe are all over her face.

“You need to see someone right now!” My sister-in-law informs me.

Sigh. It looks like I have diabetes. Tuesday began an adventure to get back into my endocrinologist to confirm the diagnosis of diabetes and determine type 1 or type 2.

By Friday, I had been diagnosed with Type 1 diabetes as a 33 year old. In exactly 1 weeks time, I went from a healthy adult to an adult with a lifelong disease. I went from someone who rarely goes to the doctor to one who will be seeing 1, 2 or even more on a regular basis. I went from someone who spend very little on healthcare to one who will be maxing out her health plan every year. I went from someone who eats healthy yet doesn’t consider what or how much she’s eating to someone who needs to know every morsel she ingests.

It’s a touch overwhelming. I’m still at the beginning, but that’s where I am today: a human being with a hole in her brain and a pancreas that doesn’t work anymore. Flawed? Yes. Still functional? Absolutely.

My Side of the Story – Part 39

To start at the beginning of the story, click here.

Discharge from Mary Free Bed

In the days leading up to my discharge from MFB, I focused on walking to all of my therapy sessions (my wheelchair was taken away from me a day or so before discharge, what a feeling!) and getting as many practical daily life tips I could get from my therapists.

We determined that I should have a stool in the shower at least for a while until my stamina had returned more. All it took was one email to our friends and a stool was found for me to borrow. Isn’t God amazing? He knows what we’ll need and provides just the right thing at just the right time. I don’t know too many 25 year olds who can readily locate a shower stool.

I remember doing some formal testing with Ken during our final Occupational Therapy sessions. I don’t remember the results or what exactly they were testing, but I must have passed. 🙂 I had quite a few tips and tricks up my sleeve already for showering myself, getting dressed, moving about the house, and basic cooking. The staff at MFB made sure I did as much as possible myself, but it was a relief to know Dan (or my mom for a short while) would be there to help should I need it.

I had a game plan to continue outpatient therapy in three areas: speech, physical, and occupational. Hmmm, that seems wrong now that I type it. I for sure did speech and occupational as an outpatient, but I’m not 100% sure about physical therapy.

I remember telling people I was in patient therapy for 11 days, so I must have been discharged around December 22, just before Christmas. My goal throughout therapy was just this: to be home for Christmas, and I was. Again, isn’t God good?

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**Picture complements of Lacey Rumley. This is the Rumley Christmas December 25, 2009.**

I don’t remember much from my discharge day, but here’s the snippets I can recall:

  • A “long” walk down the cold hall that connects the MFB building with the parking garage.
  • Dan had pulled our little red car up to the door
  • It was COLD out!
  • He helped me into the passenger seat. It felt so weird to be in a car again!
  • Walking in the front door of my home in Grand Haven. My dad holding my dog, George, back on his leash. George couldn’t give two hoots what anyone was telling him. He wanted to see his mama!!
  • Sitting on the green chair in the living room, petting my dog. All is right with the world.

While not the end of the story, this closes the biggest chapter: hemorrhage to getting home from the hospital. I still had about a month of outpatient therapy to complete before I was back to work and able to be alone (without supervision, just in case something were to happen).

I was able to share my story to my MOPs group in December 2015. The piece I found most shocking as I was preparing to speak is the short timeline. It seemed like an eternity back in 2009, but from the day of my hemorrhage to returning to work and a full life was only 2.5 months. What?! Thursday, November 12, 2009 to February 1, 2010. Such a short period of time and yet crazy to think how much happened in that time period.

Moving on…must finish my story: Some memories then outpatient therapy…

Next: My Side of the Story – Part 40

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