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Flawed yet Functional

Life free from autoimmune captivity

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AVM Story

Do you like a larger-than-life, miraculous healing story? Well if you do, then my arteriovenus malformation (AVM) story should be right up your alley!

As a 25 year old, an AVM was discovered in the right frontal lobe of my brain. Below is my account of the discovery, the subsequent removal of the AVM, and my healing process to return to normal life.

I like to be open and real. I want people to know and see the true me on this blog. My AVM story is part of me. Although this is just one event, it has significantly impacted my life, and I hope to encourage you by telling it.

AVM Story

The Beginning:

I was born with an arteriovenus malformation (AVM), located in the right frontal lobe of my brain. I first began seeing signs that something was not right on my senior trip near the end of my senior year of high school. Every once in a while, a climbing, numbing sensation would walk up my left arm. It would begin in my thumb and forefinger then travel up through my arm to my neck and tongue.

I now know these sensations to be localized seizures caused by the AVM. At the time, my parents and I thought it was a blood sugar issue. My brother is a diabetic, the only major medical condition in my family, so that was our only thought.

The seizures occurred sporadically: in bed falling asleep, working out, typing, sitting in class, etc. After college, I mentioned the events to my primary care doctor, but she had no idea what could be causing it since there didn’t seem to be a triggering event.

About a year after this discussion with my primary care doctor, we found out right quick what had been going on these eight years…

**All posts are linked together. Start at Part 1, and you’ll be able to follow through to the end without coming back to this page.**

My AVM Story – Part 1

My AVM Story – Part 2

My AVM Story – Part 3

My AVM Story – Part 4

My AVM Story – Part 5

My AVM Story – Part 6

My AVM Story – Part 7

My AVM Story – Part 8

My AVM Story – Part 9

My AVM Story – Part 10

My AVM Story – Part 11

My AVM Story – Part 12

My AVM Story – Part 13

My AVM Story – Part 14

My AVM Story – Part 15

My AVM Story – Part 16

My AVM Story – Part 17

My AVM Story – Part 18

My AVM Story – Part 19

My AVM Story – Part 20

My AVM Story – Part 21

My AVM Story – Part 22

My AVM Story – Part 23

My AVM Story – Part 24

My AVM Story – Part 25

My AVM Story – Part 26

My AVM Story – Part 27

My AVM Story – Part 28

My AVM Story – Part 29

My AVM Story – Part 30

My AVM Story – Part 31

My AVM Story – Part 32

My AVM Story – Part 33

My AVM Story – Part 34

My AVM Story – Part 35

My AVM Story – Part 36

My AVM Story – Part 37

My AVM Story – Part 38

My AVM Story – Part 39

My AVM Story – Part 40

My AVM Story – Part 41

My AVM Story – Part 42

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I'm Emily, and I am passionate about using food and healthy habits to transform lives with autoimmune disease. Here you will find healthy recipes that follow the Paleo or Autoimmune Protocol diets, strategies to create a life free from autoimmune symptoms, and encouragement to press on!

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Type 1 diabetic, AVM survivor, Autoimmune Protocol dieter, DIY-er, Mom, Wife, and Lover of Jesus. So glad you are here today, and I hope you leave encouraged! Learn more about me →

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